its hard to stay positive

I consider myself a relatively positive person.  I’ve survived some of the worst things that can happen and lived to tell about it.  But its hard right now to keep that positive outlook, to feel hope.  I made a switch to the Cancer Treatment Centers of America in Phoenix.  They have been much more integrative and holistic in dealing with my symptoms like the nausea, diarrhea, bone pain, fatigue.  Just not sure there is any way to alleviate the fatigue.  That is the worst right now.  At CTCA I have seen a whole range of specialists with more in the works. They have a team approach to dealing with cancer and the team regularly gathers to discuss the case.  Will be seeing a radiology specialist and an endocrinologist in the coming weeks.  The usual radiation treatments are five days per week for six weeks.  I have a 1.8 mm nodule in my lung they are considering biopsying after the first six runs of chemo and that is what they are aiming to eradicate with radiation.  I think I’ll do the radiation at home otherwise will have to stay in Arizona for six weeks.  That is not fun to think of.

My oncologist locally was not happy with my choice to move treatment to CTCA, but I’m not living my life to mollify her especially when we just could not keep up on top of the symptoms and side effects.  I was not getting the care I thought I should be having.

Once again, my family has been my saving grace.  Luke was here over the weekend and caught up my lawn work and he watched me sleep a lot.  God bless him. It has to be boring to watch your mom sleep and move from bed to sofa.

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